Your support network
Connecting with people in the HAE community can help you discover new resources, so try to build a support network and find encouragement when you need it.
HAE UK is a Patient Association focusing on the needs of people with HAE and acquired angioedema (AAE) and their families.
HAE UK is affiliated to the International HAE Patient Association.
If you or someone in your family has hereditary angioedema, HAE UK can help with:
- Information about diagnosis and symptoms
- Signposting to specialist HAE centres
- Information about medications and individual HAE management strategies
- One-to-one support and advocacy
Working with your healthcare team
Because HAE can affect people so differently, it is important to work closely with your healthcare team to create a treatment plan that is right for you.
You can use this Shared Decision Aid to help you prepare for discussions with your healthcare team about your HAE treatment and management options.
Being prepared for your appointment can put you in control and help ensure the care you receive is the best possible for your HAE and your lifestyle.