This site is intended for patients and carers based in the U.K. Click here if you are a healthcare professional.

Your support network

Connecting with people in the HAE community can help you discover new resources, so try to build a support network and find encouragement when you need it.


HAE UK is a Patient Association focusing on the needs of people with HAE and acquired angioedema (AAE) and their families.

HAE UK is affiliated to the International HAE Patient Association.

If you or someone in your family has hereditary angioedema, HAE UK can help with:

  • Information about diagnosis and symptoms
  • Signposting to specialist HAE centres
  • Information about medications and individual HAE management strategies
  • One-to-one support and advocacy





icon-envelope-patient.svg Contact details for HAE UK

Telephone 07975 611787

Working with your healthcare team

Because HAE can affect people so differently, it is important to work closely with your healthcare team to create a treatment plan that is right for you.

You can use this Shared Decision Aid to help you prepare for discussions with your healthcare team about your HAE treatment and management options.

Being prepared for your appointment can put you in control and help ensure the care you receive is the best possible for your HAE and your lifestyle.

Job code: C-ANPROM/GB/HAE/0004 Date of preparation: August 2021